It is only Tuesday and it seems like this week has lasted forever. We left yesterday morning to come up to Birmingham.  I had pretty much p...

Day 1 Birmingham

It is only Tuesday and it seems like this week has lasted forever. We left yesterday morning to come up to Birmingham.  I had pretty much packed everything Sunday night but just needed to pack the stuff we needed for Monday morning. I couldn't sleep at all Sunday night. My mind was racing thinking of things I needed to remember. Finally at 3:30 Monday morning, I woke Shane up and told him I was getting up. As soon as I snuck out of the bed, Shane moved over and snuggled with Madison. She has to be touching you while she sleeps. I turned on the baby monitor shortly there after only to hear Madison crying for Able (a.k.a me), and Shane saying, "Hold on, I'll go get Able." Well, as soon as I got in the room Madison yanked her oxygen off and started laughing. I guess it's safe to say that if I'm up, she's up!

I was actually thankful we were both up early. She had plenty of time to play in her walker and I wasn't rushed getting the last minute things packed. We left the house at 8:30 and pulled in to the hotel at 4:30. We had to get everything unloaded, eat dinner, and then check in at the hospital by 7:00.

I was very stressed about how the sleep study was going to go. We have attempted 3 in the past with only 1 going well. Our pulmonary doctor wants to do one once a year! God has a way of putting things into perspective. All the stress that I had been having and losing sleep over seemed minor when we got to the third floor of the hospital. As soon as we stepped off the elevator we saw the Critical Care waiting room. The room was packed and quiet and the look on those parents' faces said it all. My heart broke for all that were in there.  Suddenly my stress for this sleep study seemed minor.

I am thankful that the sleep study went well. Madison was such a trooper. She cried the entire time they were hooking everything up. We were able to sleep beside each other and we held hands all night. We will get the results of the study on Thursday when we meet with the pulmonary doctor. Today we met with the orthopedic and it was a good appointment. We were supposed to meet with a nutritionist at 2:00 but we we exhausted and my brain was fried. I canceled that appointment and we came to the hotel to nap. It was the best nap! Tomorrow we meet with the genetic doctor at 9:00. If she thinks we really need to see the nutritionist we will before we leave. At 10:30 we see the cardiologist and then at 3:15 we see the ENT. I will post updates tomorrow from those appointments. Thank you for all the phone calls and texts to check on us, but most of all thank you for all the prayers that you have said for our precious Madison. We love you all.

Last night before they got Madison all hooked up, we were able to FaceTime with Paul, Amy, and Aubrey.  We all enjoyed the laughs!